- I call
this excerpt from Bill's
journal
- "Breakdown"
-
... Then we drove my
mother down to Mrs. Leonard's house, just for a look.
She was very apprehensive about it and was determined
beforehand that it would be a nightmare, and that's
what it was to her. She behaved rather badly down
there, said that she couldn't sit cooped up in that
cell for twenty-four hours a day. At Mother's request,
Mary got in touch with the Lutheran home for elderly
people and took Mother to see it. It's down on Madison
opposite the park. Mother was wildly enthusiastic
about it, wants to go there at once. Of course, they
have to accept her first, then put her on a long
waiting list. The entry fee is $2,500 and they expect
to be sole beneficiaries of one's estate.
-
- Mother refused flatly
to go to Mrs. Leonard's. Mary showed her Poskanzer's
brother's nursing home, found that, like the other one
we looked at, it charges seventy-five dollars a week.
Mother said that she couldn't afford this.
-
- Mary issued an
ultimatum - that she goes to Mrs. Leonard's next
Tuesday and tries it for at least two weeks. Then, if
she can't stand it and hasn't made other arrangements,
she must move into an apartment which Mary will choose
for her.
Mother had Mary put an ad in the paper
asking for room and board, preferably somewhere around
here.
-
- This thing is hurting -
the ruthlessness, the inhumanity, and my own feeling
of helplessness - my inability to save either my
mother or my wife from this mutually destructive
conflict.
-
- My mother is so pitiful
in her weakness and her misery, and yet I can't lift a
finger to save her from any of the torture Mary
inflicts upon her without threatening Mary's very
precarious mental balance, and so I too must be
ruthless. I try to be kind to Mother in little ways
and give her vague assurances that we'll work it all
out somehow. Mother can't see at all why she is being
driven out, but I can see it more and more clearly.
She really can't continue to live here; for her own
good she can't, and there must be somewhere else where
she can build some sort of life, if she is capable of
doing that under any conditions. Her whole orientation
to life has been masochistic for so long. Even Aunt
Ann's infantile megalomania seems to offer a better
base for a tolerable adjustment. It's this masochism
of hers that is completely intolerable to Mary. At
least in her present condition, she just simply can't
take it.
-
- I wrote my first letter
to Billy today - about the most self-consciously
parental thing I've ever done, and it was a little
difficult. In my own veiled way I often suspect that I
am a bigger flop as a human being than was either of
my parents. It's true they failed in many ways and are
at least responsible partially for my own failures,
and yet they probably gave me more love than I have
ever given any of my children, and they probably even
fought their battles more realistically and
whole-heartedly than I have ever fought mine. I'm too
complete a fraud even to be able to become honestly
mentally ill or to commit a violent act. Certainly,
then, I have no right to pass moral judgment on
anyone.
-
- Wednesday, September
nineteenth
- Even amid her storms
Mary is still doing some hard objective work on
mother's problems - a weird mixture of concern and
ruthlessness. She storms at Mother and then gives her
therapy, tries to get her to face up to her problem
and see that she will be much better off if she takes
a hand in running her own life. Mary is trying to
arrange an interview for Mother with a Miss Moyer, who
specializes in counseling elderly people. She also
located a couple of apartments in this area, looked at
them, showed one of them to Mother. Mother began to
see the possibility that she might live by herself
again. (I'm not so sure that this is a realistic
possibility myself) On the other hand, Mary tells
Mother that she can go and live in a hotel until she
can make some more permanent arrangement.
-
- Mary also put in a lot
of work on betting Bucky's financial affairs in order.
-
- I collected my pay
check, which didn't seem to be as much larger as I
imagined it would be, and deposited it in the
bank.
-
- September twenty-first
- Mary had her
appointment with Morgenstern
and immediately
afterward she had to drive Mother and me over to the
Albany Medical Center for an appointment with Miss
Moyer, the counseler for elderly people recommended by
Morgenstern. Finding her office involved asking in
Mother's presence where the "Psychiatric Section" was.
Although I had tried to explain to Mother why it would
be a good idea to talk over her problems with Miss
Moyer, she kept saying that she didn't know why she
was there. Mary left us, saying that she thought it
would be better if Mother had her interview without me
too, but Mother was too frightened to go in alone, and
I think I was able to break the ice and give a fairly
objective overview of the whole situation. At first
all that Mother would talk about was her desperation
and need to find some place to live quickly, and all
that she wanted, was help with this immediate problem.
I let her talk whenever she wanted to. Toward the end
she opened up just a little. Miss Moyer seems very
pleasant and quite competent. She kept asking Mother
about her interests, especially in relation to people,
an area in which Mother was very dense.
-
- We arranged to see her
again next week. Next time I hope to be able to wait
outside. Mother doesn't realize that the main help she
needs is with her own attitude and outlook. I'm not
sure that she really can be given enough therapy to
help with these long-range problems. Even so, just
being able to talk freely with an objective and yet
sympathetic party may give her a good deal of short
range help.
-
- Sunday, September
twenty-third
- Is this the first day
of fall? Yes, I think it is, and it has been fall-like
the last couple of days. Friday and Saturday morning
we had quite heavy frost and broke records for
coldness this early in the fall. The sky had a wintry
look late this afternoon.
-
- And inside it was a
bleak day too. This trouble about mother is tearing us
all apart. She told me this morning that ideas of
suicide are troubling her a great deal. The biggest
conflict at the moment is between her desire to apply
for admission to the Lutheran Home and her desire to
leave me the little capital she's accumulated. The
application blank calls for her to list her property
and agree to will it all to them and threatens
penalties for falsification. She's afraid that if she
turns some of it over to me before going in or even
making the application, they'd discover her act, by
noting the discrepancies between present income and
her bank records for the past few years, if no other
way.
-
- I'd just as soon she'd
give it all to them, especially considering her
reasons for feeling so strongly that she must make
sure that I get it (which I'd just as soon not discuss
- because they reveal only too clearly what must be
some of the roots of my neurotic difficulties). I
wrote a long letter to Louis Eaton asking his legal
advice about whether she could dispose of part of her
property before filling out that application. I wrote
to Miss Moyer telling her more about Mother's present
condition, especially her preoccupation with suicide.
-
- Monday, September
twenty-fourth
- A wump in the night
that brought us both instantly awake at four in the
morning. Mother wasn't in her room. Mary started to
run downstairs. I looked in the bathroom and there she
was, stretched out on her back. She was "out" but
quickly regained semi-consciousness, but was very
dazed and confused. We helped her back to her bed. She
complained of dizziness but showed no visible bruises,
and nothing seemed to be broken.
-
- In the morning Mary
called Poskanzer. Mary had checked Mother every few
minutes for the rest of the night, found her pulse
only mildly elevated. Poskanzer looked her over,
talked to her and tried to allay some of her
anxieties, spent about an hour with her. He found no
evidence of a cerebral accident, and said that the
phenobarb she had been taking couldn't account for her
fall or confused state. Mary fed her breakfast and
lunch in bed and tried to keep her quiet.
-
- Mary called me at
school just before my one o'clock class and asked me
to come home as soon as I could, which I did, right
after that class. Mrs. Cardany, the woman who had
agreed to furnish Mother room and board, had called up
and weaseled out of the deal. From today's perspective
it didn't look like such a good idea anyway. We
discussed other alternatives, including a couple of
places that had turned up nearby on Manning.
-
- I was looking up Mrs.
Leonard's number to tell her that we had decided to
give up the room we've been holding at her place. It
was a little after three. When Mother suddenly called
me in an urgent and disturbed way - "Billy, Billy!" I
went in and found her half out of bed and very
agitated. Mary took one look at her color and phoned
Poskanzer to come at once. Mother started to retch,
and fresh blood came up.
-
- Almost at the same time
she started passing blood [from her rectum].
Poskanzer arrived quickly, took one look, said it was
a massive internal hemorrhage, probably from a
ruptured ulcer, called St. Peter's for an emergency
admission and called an ambulance.
-
- The ambulance came just
as the children were getting out of the school across
the street. The nice lady policeman held up traffic
for us. I rode with Mother and Mary followed in our
bus.
-
- Mary remembered and
recognized fully half the personnel we encountered in
the hospital, recognized Dr. Leddy, a surgeon she
thought was good, in the elevator, was able to put
Poskanzer on his trail immediately when he suggested
calling him into consultation.
-
- They cut off Mother's
clothing and got her into a bed in a four-bed ward.
Glucose i.v.s were started into both her arms. Her
blood was typed, which took some time, and then a
large bottle of fresh blood was hooked into the i.v.
system. A drain was run down into her stomach, and the
blood that came out was not so much as we feared and
was darker. Her pulse, which had gone way up, came
down a little.
-
- Mother became quite
calm. She was convinced she was dying, and she wanted
to do it the right way. She told us that she loved us
both and repeated her careful instruction about where
her valuables were kept. Later the sedation took
effect, and she felt discomfort. She found the tube
into her stomach and the urethral catheter very
uncomfortable. Leddy said that he would make the
decision later in the evening as to whether surgery
was necessary, said that of course at her age she was
not a very good surgical risk.
-
- Mary and I stayed near
her, did what we could. Finally, when she was quieter,
we went down to the hospital cafeteria in the basement
for a quick supper. Mary went home for a while to take
care of the children while I sat with Mother. Later
she drove me home, so that I could make some sort of
preparation for tomorrow's classes. She said that if
nothing further happened, she'd come home shortly
after eleven, when the night nurses came on.
-
- I am worried about Mary
too. She was running a temperature of ninety-nine-six
or more earlier in the day, and with her present
psychological state and the role she may feel that she
has played in this whole matter.
I'm waiting
now for her to call or to come home.
-
- Mary got home about a
quarter of one, reported that Mother was on her third
pint of blood, showed little change.
-
- Tuesday, September
twenty-fifth
- Doris Creegan picked up
Mark this morning, as she said she would, but off the
front porch without informing Mary, which upset her
till we discovered that she really had
him.
-
- Mary called for me
after my nine o'clock class and drove to the hospital.
Mother was dazed, very uncomfortable but her condition
seemed unchanged.
-
- I left at eleven,
walked back to school, which, pursuing a ragged
hypotenuse, took me longer than I anticipated. I had
lunch, prepared briefly, met my one o'clock class, did
a little work that I couldn't postpone, bused home,
gave Tommy instructions, then took a bus over to the
hospital.
-
- Mary was coming out
just as I entered. Things had taken a turn for the
worse again. Mother had had two more massive
hemorrhages. Transfusions had to be pumped in under
pressure. They could no longer delay and had just
taken her up to the operating room. I had signed a
permit for surgery when I was there in the morning.
X-rays had been impossible of course. They had to go
in without knowing the location of the trouble.
-
- We went home for a
while. I kept expecting a phone call telling us that
Mother had not survived the operation. Mary said that
she thought that she had at least a fifty-fifty chance
because her heart was still in pretty good condition.
-
- At four-thirty we
returned. She wasn't back yet. About quarter to five
Dr. Leddy, the surgeon, appeared down the hall. He's
not a bad sort, rather simple and earthy in his
manner. He said that she came through the operation
well, that they found an ulcer the size of
well, he indicated something between a walnut and a
ping-pong ball. In the middle of it was a large
inflamed blood vessel. A resident later said that it
was an unusually large ulcer, looked like an old one,
and was located on the rear wall of the stomach toward
the right side.
-
- Mary and I had dinner
in the hospital cafeteria again. The food is quite
good, and the cafeteria prices are remarkably
inexpensive. It is meant only for the staff of course.
We stayed till after eight. Mother sort of sem-revived
once or twice but slept soundly for the most part. She
was getting oxygen and a glucose i.v. Mary said that
her pulse and respiration seemed good and that she
thought she had a good chance of pulling through.
-
- Mary drove me home,
because I have preparations for tomorrow. She relaxed
for a little while, then went back because she wanted
to be there if Mother went through an agitated period.
She has, of course, been giving Mother the best of
care, been alert to all that was going on, and seen to
it that Mother got prompt attention when anything went
wrong. Mary ran a slight elevation again today, but,
as always, she was magnificent in handling an
emergency situation.
-
- How Mother will react
when she finds that she is not dead is hard to
predict. She may find this outcome very difficult to
accept. After "dying" so many deaths for so long a
time, I would like to hope that another miracle might
occur and that she might decide finally to try really
to live a little, but I suppose that this is really
too much to hope for.
-
- Mary got home shortly
after midnight, reported no change in Mother's
condition.
-
- Wednesday, September
twenty-sixth
- Doris came to take Mark
this morning, but he was feeling a little sick, so she
didn't. I called Mary at noon, after my two morning
classes, got no answer, checked to see if she was at
Doris's, got no answer, so I bused out to the
hospital. Mother was sleeping soundly, and the lady in
the next bed said that she had been asleep very
peacefully all night. She also reported that she
occasionaliy called out for her mother. (I wonder, is
there buried somewhere deep within me a small child.
to whom I may some day regress and call out for mine?
I find it hard to think so. There's a big hole there,
but why? I'm sure that my mother did her best to
mother me.)
-
- I called Mary again,
found her home. She drove over, and I sat in the car
with Mark while she went up. Mother awakened
partially, recognized her, remembered that Mary had
told her that she had had the operation but did not
remember the details. Mary told them to her again -
how big the ulcer was, where it was, and so on. Mother
wanted to know whether they had connected up her
stomach with her intestines again. Mary tried to
reassure her that nothing so drastic was involved.
-
- When we went back this
evening, she was still sleeping. We found out that
they are giving her nembutal. When she wakened briefly
and partially, she complained of pain but dozed off
again and did not seem to be under tension. Her color
was good. Only one i.v. is still going, and that, very
slowly. She seems to be getting excellent nursing
care.
-
- Just outside the door
to Mother's room and standing on a pedestal is an
Infant of Prague, decked out in heavy robes, wearing a
gold crown and carrying a gold orb. I've had to stare
at it a good deal during the last couple of days. It
doesn't improve on close acquaintance.
-
- I received a good
answer to my inquiries from Eaton. He seems to warn
against Mother's signing over her estate to a
charitable organization like the Lutheran League, says
that if she tried to hold back anything, they would
pursue it and get it. He suggests talking it over with
them first and seeing how much they would settle for.
-
- Thursday, September
twenty-seventh
- Rain all day.
- We visited Mother this
afternoon. She was almost fully conscious but not very
rational. Her interpretation of what happened to her
seems to be that it was entirely due to our treatment
of her. We tried to kill her, almost succeeded. Now we
ought to be satisfied. when can she come "home"? It
must be soon because her life's blood - money - is
draining away fast. Her detailed concerns were the
same old neurotic ones about getting her checks
deposited and so on. She's learned nothing, can't
change, and I see more clearly than ever how
absolutely impossible it is for her to continue to
live with us.
-
- Mary was so upset that
she gave me a very hard time for hours on end. We
didn't go back to visit Mother this evening as we said
we would. Didn't get through dinner till eight or so.
Probably just as well I had work to concentrate on, so
I couldn't relapse into misery, self-pity mixed with
self-accusation, and just plain misery.
-
- Mary's conscious-level
reason for attacking me is that she feels that I share
my mother's accusation of her, that I view her as a
"symbolic murderer" (a phrase I used, without the
branding nominative form, in one of our many recent
anguish sessions), and that I refuse to share equally
with her the respansibility for what has happened. My
more immediate faults, she tells me, are a refusal to
"manage" my mother and make her behave, thus putting
on her the burden of doing so, and a refusal to
recognize long ago that the situation was impossible
and was a big factor in making her (Mary) sick, and
doing something to correct it long before this.
-
- My long range
atrocities constitute an unspeakable list of
completely sickening, vicious, cowardly, and unnatural
things I've done to her and the children. It's a total
burden of guilt I cannot possible take on fully and
expect to salvage enough shreds of self-respect to
carry on. The total impact is that, whatever her role
has been in this recent unpleasantness, it has been
the upshot of years of unbearable torture and only a
fragment of what I deserve. And the trouble is that I
really am so sick, so paranoid and masochistic - that
a great part of me is only too willing to accept this
version as true. Doing so, however, doesn't help me to
deal with my immediate and pressing problems.
-
- At one point Mary said
that the only way she could go on living with me would
be if I submitted myself to immediate and massive
psychotherapy. I replied that I couldn't do this
because I felt that it was taking every last reserve
of energy and control I could scrape up to carry on
right now.The extra drain on my energy and the extra
disorganization that taking my personality apart would
render me incapable even of the miserable minimum
level of operation that I now have. She can afford to
get completely disrupted and disorganized, take to her
bed, and let things go. I can't.
-
- Well, there's the whole
nasty tale, and I don't think I glossed it over or
rationalized it very much. It ought to prove what Mary
says. I'm always too slippery to let her prove what a
shit I really am!
-
- Friday, September
twenty-eighth
- Second straight day of
solid rain, quite hard at times today, with gusty
wind.
- A quieter day. I slept
for several hours this afternoon and then felt much
better. Mary saw Morgenstern, said that he pressed her
into a corner today, talked with her about "guilty
rage."
-
- When we saw Mother this
evening, she seemed much improved, had sat up for
fifteen minutes, and she was more in command of
herself, was even showing an interest in the people
around her.
-
- Mary and I went to a
movie tonight, in the way that we used to in the old
days - drove downtown, parked the car on a dark and
narrow hillside street amid tall old buildings, walked
to the Strand, loaded up with popcorn, and saw a
double feature - a British naval thing that was
typical of its genre, and a psychiatric film called
"Pressure Point," made from a story in Robert
Lindner's The Fifty-Minute
Hour
.
-
- Tuesday, October
ninth
- The rains returned
today. We are having a good many rainy days.
- Mary talked with Dr.
Poskanzer about Mother. He said that about half of her
stomach was removed in the operation (I thought that
they just cut out a small patch). The lung trouble was
probably not an embolus but partial collapse of one
lung and filling up with fluid. He says that her lungs
seem to be clearing up well. She has continued to run
a slight elevation, so he has stopped the antibiotics
to see whether she has an abscess resulting from the
operation. He doesn't think so, however. He says that
her EKGs are good. He agrees with Mary that the chief
trouble now is with her attitude and her refusal to
try to help herself. He testifies to her strength,
says that when he tried to help her sit up in bed this
morning so that he could listen to her chest, she
almost pulled him over.
-
- Mary called Miss Moyer
to see if she had any suggestions for some sort of
simple occupational therapy for my mother. She didn't
but said that she was glad to be kept informed of her
condition.
-
- Mary ordered some
flowers for my mother, which were delivered while she
was visiting Mother this afternoon. Mary had a card
inserted saying, "From a secret admirer." Mother was
sure that the card was from me, and Mary didn't
correct her impression.
-
- And Mary also bought
some slippers and a bathrobe for Mother. She picked me
up at school around four, ... I
visited Mother and found her even more unhappy than
usual, whimpering about the "intolerable pain" she
suffered this morning when they tried to relieve her
impactions, and complaining that they hadn't given her
the enema they promised. Just then a nurse came in to
do this. On the way home I encountered Poskanzer, just
getting into his car in front of his office. He said
that when he saw her this morning she asked him why he
didn't just let her die rather than suffer all this
pain. Guilt? Childishness? She certainly is not
prepared to try in any way to make her life tolerable.
-
- I sat with Mark this
afternoon while Mary went to see Morgenstern. Doris
Poskanzer called and said that Mark was supposed to
spend the afternoon with them, so I walked him over.
Morgenstern told Mary that he thought a psychiatrist
should be called in on Mother's case. Mary mentioned
this to Poskanzer when she went over to pick up Mark,
but he didn't agree. He suggested a possible organic
basis for Mother's psychological symptoms. Mary thinks
that he is anti-psychiatric.
-
- And then the hospital
called. The nurse on the floor said that Mother had
disturbed the whole ward again, had been screaming
that she was in pain and demanded help. She said that
they had removed her to a private room. She suggested
that we come over.
-
- By the time we got
there, the shot of demerol they had given Mother had
taken effect, and she was quite peaceful. She didn't
remember making a big fuss. Except for being sleepy,
she was quite rational. We talked to her and tried to
reassure her, told her that all the tests seemed to
show that she was making a good recovery (which was
true. Poskanzer told this to Mary), and mainly, we
kept reassuring her that we were not abandoning her
and that she would be taken care of. She has been
saying for several days that she needed more constant
care than she has been getting, so we suggested a
private duty nurse. Mother agreed. She decided that
she was in most need during the day shift, so we
arranged for this service to start tomorrow morning.
It now costs twenty dollars a shift.
-
- One of the nurses told
us that the other day she tried to cheer up Mother by
telling her that she would be going home shortly, and
Mother replied, "I don't have a home."
-
- Poor Mother, things
have just piled up too high for her lately, being
transplanted hither and yon, the shock of adjusting to
living with us, the shock of being told that she could
no longer live with us, her surgical emergency, the
shock of adjusting to hospital life. And wherever I
turn, I seem to find myself as bearing a large share
of the ultimate responsibility for her troubles. I
urged that she come and live with us.
-
- I seem to have
contributed to Mary's breakdown more than can readily
be determined. I agreed to the necessity of
re-locating Mother when it became apparent that Mary
could no longer carry on under present conditions.
-
- Certainly, guilt,
though I seldom feel it consciously and vividly, must
have a good deal to do with my present psychosomatic
difficulties and general feeling of disorganization.
I've even had a few momentary interludes lately when
I've felt suddenly disoriented.
-
- Saturday, October
20th
- Mary spent a good part
of the day with Mother, who was also cared for by a
special nurse. Mary says that Mother seems
considerably better today. Mary helped her through the
crises of the day, such as eating her meals, which was
one of the things that have been upsetting her.
-
- Mary talked to Dr.
Leddy, who said that he wants to keep Mother in the
hospital a couple of days longer for observation.
Early last week Mary made arrangements for Mother at
the nursing home run by Dr. Poskanzer's brother. It is
conveniently located at the corner of New Scotland and
South Maine.
-
- Note: At this juncture the
Cuban missile crisis broke in on our domestic crisis. I
describe it separately in Chapter
27.
-
- Monday, October
twenty-second
- Mother is scheduled to
be released from the hospital tomorrow. Mary spent the
afternoon with her, then conferred with Poskanzer.
Mother herself came to the conclusion that she should
seek psychiatric help, so Poskanzer agreed to call in
someone to see her tomorrow, perhaps his
brother-in-law, Dr. Kay. I saw Mother this evening,
and she really did seem considerably improved, was
much more alert. I think that Mary should be given
almost all the credit of bringing her back from the
abyss. Not that she is out of the woods (to mix the
metaphor) as yet.
-
- Alas, that manifestation
of mental health on Bill's mother's part didn't last very
long.
-
- Tuesday, October
twenty-third
- Mother's transfer from
the hospital to Poskanzer's Nursing Home went fairly
smoothly this morning. It was done by Mary and the
private duty day nurse Mother now has (Mrs. Ehmann).
Various comp!ications arose later, however.
-
- First, there was the
question of the bonds. Mother's hospital bill amounts
to more than thirteen hundred dollars. They accepted a
check for seven hundred, said that they didn't have it
all totaled up as yet anyway, would send us a bill for
the rest. The bank informed us yesterday that they
would permit Mother to sign the sole authorization not
in the presence of a bank official, since she had a
checking account at the bank against which they could
verify her signature - but they would need a copy of
Dad's death certificate, since the bonds are made out
to both Mother and him. Mary and I went to the bank
this noon. I looked through everything in Mother's box
but could find no copy of the death certificate. Nor
could we among Mother's stuff at home. Mother later
told Mary thut she had used them all up. Mary called
Dr. Norgaard in Denton, and he said that he would get
some copies from the county health officer and send
them to her.
-
- I put back a thousand
dollars of those bonds in Mother's box. We are selling
sixteen hundred, and they ought to bring in
considerably more than that, because they've been held
about five years beyond their maturity.
-
- Just as Mary was
cooking dinner, there was a call from Poskanzer, who
had just had a call from his brother about Mother. She
was raising hell at the nursing home. Could Mary come
right over? She did, and I finished dinner. Mother was
all upset again - mostly bed pan trouble. Apparently
she has to have someone in constant attendance upon
her, or she gets frightened and upset.
-
- Wednesday, October
twenty-fourth
- Poskanzer's Nursing
Home informed us that we would have to remove Mother.
She was continuing to disturb all of the other
patients, and they couldn't let it go on. Mary
conferred with Eddie Poskanzer, Morgenstern, and Kay,
the psychiatrist who has seen Mother twice in the last
couple of days. The upshot was that no nursing home
would take her in her present condition. She would
have to be sent to the State Mental Hospital at
Poughkeepsie, and this would probably be a
condemnation to deep and hopeless senility. So we
brought her home.
-
- I carried her down from
the second floor of the nursing home and placed her in
the car. She was as limp as the proverbial sack of
flour and kept slumping between my arms. It was one of
the hardest jobs I can recall ever doing. I was
completely winded afterward. On her part, she could
only whimper and make inchoate noises.
-
- The simplest operations
that have to be done for her are difficult - feeding,
turning her over, putting her on the bedpan. She
offers no cooperation at all. Sometimes, she moans in
a most distressing, frightened way, but she can't tell
us what she wants. Mary is very good at taking care of
her, of course. But this can't go on, not for very
long. Kay says that he thinks that she has some
organic deterioration. Her confusion at night
indicates this to him. But he doesn't think that this
accounts for her present condition. She is in an acute
stage of apprehension and wild, unreasoning fear,
completely irrational, completely withdrawn,
completely gone.
-
- It is very upsetting
and very disruptive. Mary is already showing signs of
recurrence of some of her old troubles, particularly
in her relations with me. I cannot let this go on for
more than a few days. If Mother doesn't show marked
improvement soon, and at the moment it certainly
doesn't look as though she will, she must be sent
somewhere, whatever the consequences. I'm afraid that
her chances for any sort of reasonable life have about
run out.
-
- Thursday, October
twenty-fifth
- Heavy frost this
morning. The porch roof and the roof of the car were
frosted white.
- Mother seems less
disturbed but is also less responsive this evening.
Mary had to fight through the simplest operations with
her all day. Just trying to keep her from getting
dehydrated is a major problem. I picked up a load of
baby foods on the way home this afternoon to try to
have something which she can eat. The tranquilizers
Kay prescribed may be too strong. She became
completely incontinent after Mary gave her one today.
Mary is getting a new half-strength prescription.
-
- We didn't get much
sleep last night. Mother kept groaning and wailing in
a high falsetto voice. At least she seems quieter
tonight, but still in total rebellion from or against
everything, totally regressed to earliest infancy, or
beyond, unable to talk. Mary says that she doesn't
seem to be badly disoriented, however, knows where she
is, does seem to understand directions once they get
through to her.
-
- Friday, October
twenty-sixth
- Snow flurries today, A
good deal of snow farther west.
-
- Mother seemed a little
better this morning but went steadily down hill during
the day. Mary got Kay to preacribe half-strength doses
of that tranquilizer, but there didn't seem to be any
in-between point between anxious agitation and
complete torpor. In either the agitated or torpid
state, giving her food and liquids is extremely
difficult, and in both states she is completely
incontinent.
-
- I called up Kay this
evening, and we both talked to him. He thinks that
Mother has suffered considerable organic neural
damage. He says that the prognosis is not good. He
says that sometimes, after several months of complete
regression, there is a spontaneous remission, but the
general trend is downward. One negative factor in her
case, he said, is her lack of vision, since people
orient themselves primarily by visual cues. I wonder
about this. Sighted people orient themselves primarily
by visual cues, and they may not be able to learn new
cues if they suffer loss of vision in old age. But the
blind and near blind who have been this way since
childhood learn other cues.
-
- In general, however,
the prospect for Mother looks dimmer and dimmer. This
is a bad evening, identification and guilt are
becoming pretty excruciating for me. I know that the
main thing is that her whole life is catching up with
her. This happens to many of us, if not to all. My own
adjustments, I know, are very precarious, and I can
see what might well happen to me when things close in
- can see my own dismal end played out for me in all
its excruciating detail. And then there's the guilt.
If I had planned for her more wisely or taken more
decisive action, this might not have happened, or
might at least have been postponed till a time when
general physical weakness would have eased her out
more easily.
-
- Saturday, October
twenty-seventh
-
- For most of the day
Mother really did seem somewhat better. She cooperated
a little more in her own care. Both Mary and I talked
to her at length about the need to focus her attention
on things outside of herself. I asked her questions
for half an hour or so about things in her
environment. Toward evening she got increasingly
apprehensive. She seems to find her intestinal
functionings particularly frightening.
-
- Monday, October
twenty-ninth
- So bright and crisp, a
late fall day, but our lives are full of darkness.
- Last week we were all
having our collective encounter with nothingness.
Today everyone seemed already to have forgotten this
experience and were busy infesting the day with their
old cares.
-
- Mary finds that the
only way she can snap Mother back to a momentary
contact with reality is to be real mean to her. She
had another troubled night (and we had rather little
sleep). But maybe she seemed a little better today,
ate a little more. We tried to get her to sign those
series E bonds that I have to cash to pay her doctor
and hospital bills. She was willing enough to do it,
but couldn't.
-
- We finally got her up
painfully and scooted her over to her desk on a chair.
Her signatures were unrecognizable. Her attention
would wander before she could finish, and the letters
would got all scooched up and trail off.
-
- Mary is at the dress
rehearsal for the Choral Society's concert, which is
to be held tomorrow evening. So far at least Mother is
quieter this evening.
-
- Mary conferred again
with Kay today. He is still pessimistic, thinks that
sooner or later, and preferably sooner, we will have
to come around to committing her.
-
- Certainly the present
sort of arrangement can't continue much longer.
Commitment, it seems, is a rather long and complicated
process to put through, and it can be cancelled at any
point along the way. Mary and I talked it over and
concluded that we would have to start the process at
least, with the idea that we could stop it if she
shows some improvement during the waiting period. I
have a call in for Kay, and I am going to tell him to
set the wheels in motion. Monday,
- Back
to Chapter 27
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